"Step out of the darkness and into the light
. . . and know . . . that You are NOT alone!"
Welcome to the Prune Belly Syndrome Family! Here you will find information about Prune Belly Syndrome (also known as Eagle-Barrett Syndrome) and lots of supportive families who are dealing with PBS. Whether you are expecting a child who may possibly have PBS, you have a child with it, you are an adult affected by PBS yourself, or you are a friend or family member of someone with Prune Belly Syndrome. Our hope is that you will find the information and support you are looking for here.
We have special sections accessed below the photos where you can read information aimed at exactly where you are right now.
We are a new Prune Belly Syndrome group and growing rapidly. We hope you will check back often to see what is new.
If you would like to discuss with others who are dealing with PBS, go to our Support Forum.
If you would like to chat with others dealing with PBS, check out our chatroom. There will be scheduled chats that you can join. Watch for them on our Support Forum.
PBS Family Mission Statement: The Prune Belly Syndrome Family is dedicated to helping children and adults who have Prune Belly Syndrome and assisting the family members, professionals and support services that serve them. The PBSF is an all volunteer group committed to the identification, treatment and care of all with PBS through programs of education, support, advocacy, research and service. We will strive to ensure that no one with PBS will ever feel alone again.
Please Note: This site is a place for support and information (NOT personal medical advice!) No information contained anywhere in this site is to be used in place of seeking proper medical care. This site will not be held liable for any consequences of people using it in place of medical advice. This is only a site for support and referral and NOT in place of medical care. Prune Belly Syndrome CAN BE lifethreatening and requires care from a licensed medical practitioner to control it. Please seek proper care!All information given on this site is held in strict confidence and not shared without informed consent.
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