"Step out of the darkness and into the light . . .
. . . and know . . . that You are NOT alone!"

Map of PBS Worldwide

~ About Us ~

Our Stories

* Will Shireman
* Elijah Lemon
* Frank Walker
* Max

 

 

 

In Memory

* Santos Locklear Jr.

The Prune Belly Syndrome Family was begun in the Fall of 2009 by a group of families whose children were affected by PBS. We were joined by some adults
with PBS and it began to take off. A board of directors was formed in the winter
of 2009/2010. The Support Forum continued to grow. A map of PBS families
grew as well with members from 9 countries placing their pins on the map.

We continue to develop and grow and are happy to welcome anyone who is in
any way affected by Prune Belly Syndrome, whether it be an adult with PBS, a family with a child with PBS, a friend or family member, or the medical personel
who care for someone with PBS. Our Family is always happy to help your family
in any way we can.

Welcome !

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